I went to the Cancer Center for my first dose of Herceptin (only) yesterday. I was so fearful just approaching the place that I had them take my blood pressure as soon as I got to an exam room; I thought I was passing out. Upon hearing I had ideal blood pressure, I began to feel much better!
So Doc and I had another good talk. Again he offered that last full blast of chemo, but I smiled and said no thanks. When I quizzed him about why he gave the nasty Taxotere every 2 weeks rather than the recommended every 3 weeks, he went into a long exposé about trials that had been done . . . the bottom line being there is reason to believe Taxotere WEEKLY has the best results, but they didn’t have enough people able to complete the trials! (No kidding.) So instead, data is being gathered on patients who have it every OTHER week. I would have been one of those statistics if I hadn’t quit. (See next blog entry about the woman I met yesterday with the same treatment program I have.)
We talked about my difficulty sleeping with the itching/tingling sensation in my legs. He was reluctant to believe it goes away when I walked around and starts up again when seated or lying down. He as much as said it’s in my head. I can’t deny that allegation; I’ve got my parents’ genes after all (both anxiety freaks). Nonetheless, he is always quick to grab his prescription pad! He recommended Neurontin for neuropathy. I haven’t tried it yet (I’m collecting unused prescriptions) because I suspect the condition is getting better on its own and don’t want to add more chemicals to the mix.
Upon hearing that the pre-meds for Herceptin were just Tylenol tablets and half the dose of benadryl I was getting before, I felt much better about the year of Herceptin in the offing. (No more steroids.) With that, I asked him about my veins holding out and whether I’d need a port. (I’d done some research and my adamant refusal now seemed unfounded.) He said it was up to me or the nurses in the chemo area. When I was good and tired of having my right arm beat up every time, I could request a port and it would be arranged with a surgeon within days.
Once again in my favorite chair, the first nurse gave up trying to IV me, and I was never so pleased to see “the good one” heading over to get the job done. I asked her what she thought about my needing a port. Would I possibly make it to next August without one? Her answer was blunt: No way. “We’re already up to your elbow; there isn’t anywhere to go from here. You’ll either get it now or get it later, so you might as well get it now and make good use of it.” She showed me the kind (from a shoebox of various models) that my oncologist likes to use. It looks like a doorbell button. It’s inserted under the skin – so just a bulge as long as it’s needed. Near the clavicle. Needles and tubes go easily in and out. No muss, no fuss.
I’m trying to schedule port surgery for November 19, so Doc can examine how it’s coming along on the 20th when we use it for the first time with the next round of Herceptin. I am trying to be courageous again.
My anemia improved; no more shots. So if my anemia’s no longer concerning, why am I so incredibly weak?
I don’t recommend trying this, but apparently sitting and lying down for the greater part of 2-3 months renders one quite incapable of walking more than a few steps.
I’m so determined now to get back to health that my mind is a little bit ahead of my body. Last night I wanted to begin my new walking regimen (Doc wants me to work up to 30 minutes of brisk walking daily by the time I’m back in three weeks), so Greg and I set out with the intent of going 10 minutes one direction and 10 minutes back. Shocking as it is, I quickly realized I had to reduce the goal to 10 minutes TOTAL – and even that was very slow and incredibly hard. I had no idea my muscles were so deconditioned. I am more determined than ever. My task this afternoon is to walk to Aldi and back.
(The following blog entry is about a woman I met in the next chemo chair yesterday who shares my particular long treatment program for the same diagnosis.)
So Doc and I had another good talk. Again he offered that last full blast of chemo, but I smiled and said no thanks. When I quizzed him about why he gave the nasty Taxotere every 2 weeks rather than the recommended every 3 weeks, he went into a long exposé about trials that had been done . . . the bottom line being there is reason to believe Taxotere WEEKLY has the best results, but they didn’t have enough people able to complete the trials! (No kidding.) So instead, data is being gathered on patients who have it every OTHER week. I would have been one of those statistics if I hadn’t quit. (See next blog entry about the woman I met yesterday with the same treatment program I have.)
We talked about my difficulty sleeping with the itching/tingling sensation in my legs. He was reluctant to believe it goes away when I walked around and starts up again when seated or lying down. He as much as said it’s in my head. I can’t deny that allegation; I’ve got my parents’ genes after all (both anxiety freaks). Nonetheless, he is always quick to grab his prescription pad! He recommended Neurontin for neuropathy. I haven’t tried it yet (I’m collecting unused prescriptions) because I suspect the condition is getting better on its own and don’t want to add more chemicals to the mix.
Upon hearing that the pre-meds for Herceptin were just Tylenol tablets and half the dose of benadryl I was getting before, I felt much better about the year of Herceptin in the offing. (No more steroids.) With that, I asked him about my veins holding out and whether I’d need a port. (I’d done some research and my adamant refusal now seemed unfounded.) He said it was up to me or the nurses in the chemo area. When I was good and tired of having my right arm beat up every time, I could request a port and it would be arranged with a surgeon within days.
Once again in my favorite chair, the first nurse gave up trying to IV me, and I was never so pleased to see “the good one” heading over to get the job done. I asked her what she thought about my needing a port. Would I possibly make it to next August without one? Her answer was blunt: No way. “We’re already up to your elbow; there isn’t anywhere to go from here. You’ll either get it now or get it later, so you might as well get it now and make good use of it.” She showed me the kind (from a shoebox of various models) that my oncologist likes to use. It looks like a doorbell button. It’s inserted under the skin – so just a bulge as long as it’s needed. Near the clavicle. Needles and tubes go easily in and out. No muss, no fuss.
I’m trying to schedule port surgery for November 19, so Doc can examine how it’s coming along on the 20th when we use it for the first time with the next round of Herceptin. I am trying to be courageous again.
My anemia improved; no more shots. So if my anemia’s no longer concerning, why am I so incredibly weak?
I don’t recommend trying this, but apparently sitting and lying down for the greater part of 2-3 months renders one quite incapable of walking more than a few steps.
I’m so determined now to get back to health that my mind is a little bit ahead of my body. Last night I wanted to begin my new walking regimen (Doc wants me to work up to 30 minutes of brisk walking daily by the time I’m back in three weeks), so Greg and I set out with the intent of going 10 minutes one direction and 10 minutes back. Shocking as it is, I quickly realized I had to reduce the goal to 10 minutes TOTAL – and even that was very slow and incredibly hard. I had no idea my muscles were so deconditioned. I am more determined than ever. My task this afternoon is to walk to Aldi and back.
(The following blog entry is about a woman I met in the next chemo chair yesterday who shares my particular long treatment program for the same diagnosis.)